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‘The role of patients in infectious disease research – from study participants to scientific partners’
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We are pleased to invite you to attend the industry-sponsored symposium, ‘The role of patients in infectious disease research – from study participants to scientific partners’, taking place at this year’s meeting of the European Congress of Clinical Microbiology and Infectious Diseases (ECCMID) on Friday 9 July, 2021 (16:15–17:45 [CEST]).
As the first step in a paradigm shift, the virtual patient-centric symposium will explore how and why healthcare professionals can partner with the patient community in infectious disease research. Initially the symposium will explore the spectrum of patient involvement in research, where patient-partnered research sits on this spectrum for infectious disease and what it can provide in terms of clinical value. Further focus will be on identifying what has worked well for patient-partnered research in other therapy areas including oncology and kidney disease, how funding and publishing can facilitate patient involvement in research, case studies of patient participation in research, and the current status of patient-partnered research in infectious disease. Finally, the symposium will conclude with a panel discussion related to the opportunities in infectious disease, as well as the next steps as a research community with ECCMID 2022 in view.
If you have not yet registered for ECCMID and would like to do so, please follow the link:
eccmid.org/registration/
We look forward to welcoming you to this patient-focused event.
Dr Nikhil Wagle
Chair
Dr Daniel Diekema
ESCMID-appointed Chair
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16:15–16:22 CEST
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» Introduction and objectives
Dr Nikhil Wagle (USA) and Dr Daniel Diekema (USA)
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16:22–16:25 CEST
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» Our commitment to patients and infectious disease
Pol Vandenbroucke (USA)
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16:25–16:35 CEST
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» An emerging science – making the case for patient-partnered research
Dr Nikhil Wagle (USA)
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16:35–16:45 CEST
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» Finding funding – how foundations can facilitate patient-partnered research
Dr Gemma Buckland Merrett (UK)
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16:45–16:55 CEST
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» Patient-partnered publications – the journals’ perspective
Dr Amy Price (USA)
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16:55–17:05 CEST
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» From concept to action – case study of patient participation in research
(EKPF)
Daniel Gallego (Spain)
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17:05–17:15 CEST
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» From concept to action – case study of patient participation in research
(IAPO)
Dr Neda Milevska Kostova (Macedonia)
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17:15–17:25 CEST
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» From concept to action – case study of patient participation in research
(Sepsis Alliance)
Thomas Heymann (USA)
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17:25–17:40 CEST
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» Panel Q&A
All faculty
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17:40–17:45 CEST
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» Summary and close
Dr Nikhil Wagle (USA) and Dr Daniel Diekema (USA)
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Dr Nikhil Wagle (Chair)
Assistant Professor of Medicine, Dana Farber Institute, Harvard Medical School/Count Me In, USA
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Dr Daniel Diekema (ESCMID-appointed Chair)
Director, Division of Infectious Diseases, Clinical Professor of Pathology, Clinical Professor of Internal Medicine (Infectious Diseases), University of Iowa, USA
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Pol Vandenbroucke
Chief Medical Officer, Pfizer Hospital Business Unit
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Dr Gemma Buckland Merrett
Science and Research Lead, Drug-Resistant Infections Priority Programme, Wellcome Trust, UK
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Dr Amy Price
Research and Evaluation Editor, British Medical Journal, USA
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Daniel Gallego
President, European Kidney Patients Federation, Spain
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Dr Neda Milevska Kostova
President, International Alliance of Patients’ Organizations Patients for Patient Safety Observatory, Macedonia
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Thomas Heymann
Executive Director, Sepsis Alliance, USA
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